Welcome to Progeria UK. We are charity which aims to support children and their families living with the genetic ageing disorder, Progeria.
We also support the Progeria Family Circle in organising an annual reunion for the families living in Europe.
Progeria UK was registered with the Charity Commission in August 2006 by the parents of Hayley Okines under our previous name of Hayleys Hope with our work dedicated to raising funds for the Progeria Research Foundation.
In 2010 we were invited to host the first Progeria Reunion to be held here in the UK so the objects of the charity were changed to allow us to fund this amazing meeting. We hosted further Reunions in 2011 and 2013 we are now raising funds to pay for the UK families travels to annual Reunions across Europe.
The Reunions cost around £30,000 to organise which includes travel, accommodation and activities for all European children that have Progeria and their families.
If you think that you may be in a position to help please don’t hesitate contact us.